‘I’m going to fill their memories with the most beautiful images’: Canadian parents take their four children on year-long world trip before three  – aged 12, seven and five – go blind with rare genetic disease 

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  • Rare genetic condition retinis pigmentosa diagnosed in three children
  • This causes a gradual deterioration of vision, and can leave victims blind until they reach their 30s.
  • Mother Edith Lemay, who works in finance in Quebec, where the family is based, said she wanted to take the children on a journey to build a bank of memories for them.
  • Parents said it has been wonderful to see the kids bond on the journey, but it’s also tough at times because they’re all together 24/7. The smallest has already become a question bomb

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A six-year-old Canadian family has embarked on a year-long journey around the world before losing sight of their 12-year-old daughter and seven- and five-year-old sons due to a rare genetic condition.

Parents learned that their eldest Mia Lemay-Pelletier has retinis pigmentosa—which can leave her blind until her 30s—when she began struggling to see evenings in 2018. The next year his brothers Colin and Laurent were diagnosed with the same disease, but everything became clear to the second-born Leo.

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Mother Edith Lemay, who works in finance in Quebec, where the family is based, said that when the brothers were diagnosed it was a world trip to fill their brains with ‘visual memories’ before their vision deteriorated. It was a stimulating moment.

The family left for a holiday in March – which has no set itinerary – which has so far seen them travel to Namibia, Zambia, Tanzania, Turkey, Mongolia and now spend a week in Indonesia. He had first planned to start in 2020 with a trip to Russia and China, but it was canceled by the COVID pandemic.

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Ms. LeMay said that as well as giving her children a rich bank of memories, she also wants to show her children through travel that no matter how hard life is, they have running water in their homes and they go to school. able to go. Everyday.

Describing the journey on social media, she said that it has been wonderful to see the kids come together, but admitted that being with them 24/7 is ‘hard work’. The youngest has already turned into a ‘question bomb’, he said, wondering if it might be better to jump out of the bus window to escape.

Retinis pigmentosa is a rare genetic condition where cells in the retina – the light sensitive part of the eye – begin to break down. Symptoms usually first appear in childhood, have problems with night vision, worsen over time, and sufferers gradually lose their use of peripheral or central vision. There is no cure for this disease and in some cases patients become blind by the age of 30.

Pictured above are parents Edith Lemay (second right) and Sebastian Pelletier (second left) with their four children. 12 year old Mia is on the far right. In the picture are Leo, nine, Colin, seven, and Laurent, five. The family is on a year-long world tour after discovering that three children have a rare genetic condition that will cause their vision to gradually deteriorate.

The journey began in March 2022 when the family flew from Canada to Namibia.  Pictured above are four children bent over to protect their eyes from the sand

The journey began in March 2022 when the family flew from Canada to Namibia. Pictured above are four children bent over to protect their eyes from the sand

Tanzania: The family also went to Tanzania to go on safari.  While there he saw the elephant, the cheetah and the hippopotamus.

Tanzania: The family also went to Tanzania to go on safari. While there he saw the elephant, the cheetah and the hippopotamus.

Mongolia: Travel has also seen him travel to Mongolia where he lived in tents and also rode camels in the Gobi Desert.  Their mother said that she wanted to show the kids that they were lucky to have done that.

Mongolia: Travel has also seen him travel to Mongolia where he lived in tents and also rode camels in the Gobi Desert. Their mother said that she wanted to show the kids that they were lucky to have done that.

One of the boys is shown in Mongolia

Biggest Mia, 12, in Mongolia

The kids are shown above on their travels in Mongolia. He has now left for Indonesia for the next leg of the tour. There is no itinerary, his parents said, but he has a bucket list of activities like riding a camel.

The mother also said that she has at least ten for every good picture of her kids where they are drawing a face or behaving badly.  Shown above is one of his sons drawing a face on an approach in Turkey

The mother also said that she has at least ten for every good picture of her kids where they are drawing a face or behaving badly. Shown above is one of his sons drawing a face on an approach in Turkey

Mother Ms Lemme and father Sebastian Pelletier got the idea for World Vacation when their specialist suggested that they should maximize ‘visual memories’ for children.

in an interview with CNN TravelMs LeMay said: ‘I thought, “I’m not going to show up” [Mia] An elephant in a book, I’m taking him to see a real elephant”.

‘And I’m going to fill her visual memory with the best, most beautiful, images I can do.’

She said: ‘With the diagnosis, we have an urgency. There are great things to do at home, but nothing is better than traveling.

The family had initially planned a land trip through Russia and China to begin the July 2020 holiday, but these plans had to be put on hold due to the global pandemic.

He traveled to eastern Canada in July of the following year as restrictions were eased, but finally set out on his year-long trip starting in Namibia in March 2022. He flew from Mongolia to Indonesia last week, and has no plans to return to Quebec for at least six months.

They are following a bucket list of activities they want to try, with Mia saying she wants to go horse riding for Laurent and saying he’d like to drink camel juice.

They were supposed to start the holiday in July 2020, but the plans had to be delayed due to the COVID pandemic.  However, in July of this year he began the year-long tour (shown above preparing to leave Quebec).

They were supposed to start the holiday in July 2020, but the plans had to be delayed due to the COVID pandemic. However, in July of this year he began the year-long tour (shown above preparing to leave Quebec).

Turkey: Kids shown here on a trip to an abandoned village in Turkey

Turkey: Children shown here on a trip to an abandoned village in Turkey

Mongolia: The family is shown above standing outside a hut where they visited

Mongolia: The family is shown above standing outside a hut where they visited

Sometimes children bring their own diagnosis. Mia has known about it since she was seven years old, while the youngest two came to know about it only recently. For Leo, this has always been a ‘fact of life’.

Ms LeMay said: ‘My little one asked me, “Mom, what does it mean to be blind? Am I going to drive the car?” That’s five. But slowly, he’s understanding what’s going on. It was a normal conversation for him, but for me it was heartbreaking.

National Eye Institute…

Credit: www.dailymail.co.uk /

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