- The position causes the woman’s shoulders to meet in the middle of her body.
- Danielle Lewis, 33, of Staffordshire was born with cleidocranial dysplasia
- Rare genetic condition affecting the bones that can affect the collarbone and skull
- There are 17 families in the world who have this gene and they meet once a year.
Being born with the rare condition in a million a woman’s shoulders can fuse together in the middle of her body which leaves her without a collarbone.
Danielle Lewis, 33, of Cannock, Staffordshire, was born with cleidocranial dysplasia, a rare genetic condition affecting the teeth and bones, which in turn can affect the spine, skull, collarbone and legs.
Danielle was born without a collarbone and on social media she shows off a unique party trick where she can touch her shoulders together.
Danielle Lewis, 33, of Cannock, Staffordshire, was born with a rare one in a million condition that can cause the shoulders to fuse together in the middle of her body that leaves her without a collarbone.
Danielle was born with cleidocranial dysplasia, a rare genetic condition affecting the teeth and bones, which, in turn, can affect the spine, skull, collarbones and legs.
She said: ‘There are only 17 families in the world that have this gene and we all meet once a year.
‘My family knew as soon as I was born that I had cleidocranial dysplasia and as well as being born without collar bones, it also affected my height – I’m only 4ft 11 – as well Joint pain, a prominent forehead, and small limbs.
‘Being able to touch my shoulders together in front of my body is definitely my party trick and the first time I realized I was capable of doing it when I was younger.
‘I was lying on my side and my shoulders were touching. My friend pointed it to me and couldn’t believe it. I thought everyone can do this.’
Being able to touch your shoulders together is Danielle’s party trick that she shows off on her TikTok account
She wrote on her latest TikTok video that her trick ‘works every time’ when someone asks ‘what she brings to the table’
Danielle Was Born Without A Collar Bone And On Social Media She Shows Off A Unique Party Trick Where She Can Touch Her Shoulders Together
Danielle has passed the rare condition to her three children; Ruby Angel, 13, Lily Grace, 12, and Max Thomas, six, each share a fascinating ability to touch their shoulders together.
The stay-at-home mom continued: ‘People are so shocked when they see us trick our party.
‘It’s not every day that you see someone touching your shoulders together, so I think it’s even more shocking when some of us can do it together.
‘They’ve always wanted to do it themselves because they think they’ll be able to do it too. It makes us laugh.
The stay-at-home mother said people are ‘very surprised’ when they see her and her kids doing their party tricks
Danielle has passed the rare condition to her three children; Ruby Angel, 13, Lily Grace, 12, (pictured) and Max Thomas, six
Danielle (centre) pictured with her two daughters Ruby Angel and Lily Grace during summer vacation
Danielle’s skin has gotten thicker over the years and she doesn’t care what people think of her, that’s something she wants her kids to develop too
‘It’s the 50/50 gene and I was hoping I wouldn’t pass it on to my kids because I was bullied sometimes when I was younger.
‘It affects your teeth, so when I was 11 I had to have surgery to remove all my baby teeth and wait for the other one to come. I have crooked teeth now.
‘But over the years my skin has become thicker and now I don’t care what people think of me.
‘I want to be the same for my girls because I want them to live a free and happy life, and not feel like I did.’
What is Cleidocranial Dysplasia?
Cleidocranial dysplasia is a condition that primarily affects the development of bones and teeth.
Individuals with cleidocranial dysplasia usually have underdeveloped or absent collarbones, also known as clavicles.
Cleidocranial dysplasia occurs in approximately 1 per million individuals worldwide.
This is less likely because many affected individuals have mild signs and symptoms.
Cleidocranial dysplasia is usually caused by mutations in the RUNX2 gene.
This gene provides instructions for making a protein that is involved in the development and maintenance of teeth, bones, and cartilage.
Indications include, but are not limited to:
- Insufficiency or delayed closure of fontanelles, soft spots between the plates of the skull in infants
- broad, flat, or protruding forehead
- Ear problems, including ear infections and sometimes deafness
- baby teeth that don’t erupt on their own
- impacted adult teeth that may be surrounded by bone and not grow on their own
- short stature
- little fingers
- Incompletely formed or missing collarbones, sloping shoulders
- extra or missing ribs
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