- Albie-Junor, a five-year-old from Holywell, Wales, was born with a condition of fibula hemimelia
- His left leg was deformed and his left leg was 5cm shorter than his right, so it was amputated
- Dad appeared with Daniels This Morning to discuss his latest achievements
The father of a five-year-old with a disability, who has become the youngest person to ever measure Snowdon, has said how ‘proud’ he is of his son’s achievement.
Alby-Jr. Thomas of Holywell, Wales, who celebrates his fifth birthday today, appeared on This Morning with his father and climbing partner, Daniel.
Daniel explained to presenters Alison Hammond and Dermot O’Leary that their son was born with a condition known as fibula hemimelia – a rare condition, which is estimated to occur in one in 40,000 births, and causes damage to the fibula bone. There is partial or complete absence. in calf.
He and Albie’s mother Rachel were given the option to amputate or amplify their leg by pinning it.
“Due to this condition, his leg was deformed and his left leg was 5 cm shorter than his right leg,” Daniels said. ‘He has a tibia bone but no fibula bone behind him. There were two options – his leg is amputated or he has been pinned.
Alby-Jr. Thomas of Holywell, Wales, who celebrates his fifth birthday today, appeared on This Morning with his father and climbing partner Daniel (pictured, together)
Daniels said it was a proud moment when she and son Albie put their hands together on top of Snowdon (pictured)
He continued: ‘That means if he had pinned it it would have been about four times as long at a certain time in his childhood. It would have been such a big metal thing around his leg and at the end of it his leg could still be amputated.
‘For me, it was a tough decision but it was the easier one of the two. it was the best.’
Rare birth defect that occurs in one in 40,000 births: How fibrous hemimelia is treated
Fibular hemimelia is the partial or complete absence of the fibula and is the most common form of lower limb deficiency present at birth.
It is estimated to occur in one in 40,000 births.
The lower leg consists of two long bones, the thick one called the tibia and the thin one called the fibula. With fibular hemimelia the tibia is smaller than normal and the fibula is missing or underdeveloped.
A leg affected by fibular hemimelia will appear smaller than an unaffected leg. The tibia may be bent and the foot may also be shorter than normal, may be turned outward at the ankle and may have fewer than five toes. The knee also often becomes sore and may move abnormally.
Men are 50 percent more likely to be affected than women, and former Paralympic Oscar Pistorius had the condition.
Most cases of fibular hemimelia are believed to occur without a cause.
Treatment will depend on the severity of the condition and how normal the foot is.
If the leg is moderately normal, it may be possible to lengthen the leg, and if the leg is turned outward, it may be possible to adequately correct it using surgery.
If the foot is not formed normally enough and the tibia is too short, it may be best to cut it through the ankle.
In almost all cases prostheses can be used.
Source: Kadam Charity
But Daniel went on to describe how the amputation never left his little boy behind – adding that he was very proud of it. Alby to battle the elements and climb to the top 3,560 feet in Wales – despite Hurricane Arwen.
Daniel explained: ‘There were some icy parts but as it was going up as it was falling down, Albie joked, “I thought it must have been a big mountain!” I said, “Don’t be too presumptuous yet!’
He went on to say how he was ‘proud’ when he put his hands together on top of the mounting.
‘I already knew what he was capable of,’ said Albie’s inspiring father.
Since the age of two, Albie has been running on a prosthesis and even dreams of competing in the Paralympics.
‘The moment the nurse handed it to me, I told Albie “I promise you I’m going to bring you to the Paralympics,” Daniel explained.
‘So I closed my small joinery business, signed up for a PT course, fast forward now that I’ve gone to uni, I’m doing more sports therapy and gaining as much knowledge as I can so it’s up to her and me The customers should be resolved well.
Dermot asked Daniel when the running started.
Daniel explained, ‘I was overweight, running was not my sport. ‘But I wanted to show him that you can achieve anything in life.’
‘Running was a bit challenging but then I found an ultra running club.
‘I joined him and he showed me a completely different side of it.’
Alison praised Daniels for being such an ‘inspiring’ father, and when he asked Albie how his father was, Daniels whispered: ‘Tell some lies…Grow me up!’
Albie joked: ‘No!’
Discussing Snowdon’s idea, Daniel explained: ‘We went up some mountains in Wales and went on difficult routes when he was two years old. He didn’t have his blade then and he managed it and it was easy.’
He continued: ‘Then, I had Snowdon in my head while I was walking. Everest is in my head now!
‘I want to do Ben Nevis this year but it depends on security this year.’
Daniel goes on to describe how Albie often says: ‘I want to run with Daddy in the mountains.’
She continued: ‘As long as he wants to do this stuff, I’m there and I’ll push him when he needs to push. he is able.’
Daniel explained how Albie (pictured left and right together) often says: ‘I want to run with Daddy in the mountains’
Alison described Daniels as Albie’s “inspiring” father. picture, together this morning